{"id":1370,"date":"2021-10-27T11:28:11","date_gmt":"2021-10-27T21:28:11","guid":{"rendered":"https:\/\/hawaii.carpentermediagroup.com\/midweekhawaii\/?p=1370"},"modified":"2021-10-27T11:28:11","modified_gmt":"2021-10-27T21:28:11","slug":"jerry-boster","status":"publish","type":"post","link":"https:\/\/hawaii.carpentermediagroup.com\/midweekhawaii\/jerry-boster\/","title":{"rendered":"The Everyday Hero"},"content":{"rendered":"
\"\"

(From left)<\/strong> Patient Lena Matsumoto, instructor Kathy Lohman, patient Robert Frederick, personal trainer Glen Higa, Jerry Boster, patient Mike De Cero, exercise physiologist Amber Curtiss and patient Raymond Kurosu
<\/p><\/div>\n

Hawai\u2018i Parkinson Association president Jerry Boster continues to be an inspiration and help to those living with the dreaded nervous system condition. That includes himself.
\n<\/em><\/strong><\/p>\n

Jerry Boster is not a household name like Michael J. Fox, Muhammad Ali, Linda Ronstadt or Pope John Paul II. But he does share something in common with all of these famous people.<\/p>\n

He, too, has Parkinson\u2019s.<\/p>\n

Boster learned of his progressive neurodegenerative condition eight years ago while in the process of retiring as a U.S. Navy commander. The news, he says, hit him like a \u201cgut punch.\u201d<\/p>\n

\"\"

Exercise physiologist Amber Curtiss encourages patient Raymond Kurosu to keep his eyes fixed on the moving hand pads.<\/p><\/div>\n

Admittedly, he disregarded the early signs of Parkinson\u2019s, a condition that affects 1 million Americans and 8 million people worldwide.<\/p>\n

\u201cMy wife, Janice, had seen the left-hand tremors and change in gait. She brought them to my attention, but I was in denial so I ignored her and the symptoms,\u201d he remembers.<\/p>\n

Fortunately, a family friend was finally able to talk him into seeing a neurologist. Doing so not only put him on the path to receiving the necessary treatment, but also placed him in a position to help others who live with the condition.<\/p>\n

\u201cBy inclination and training, I\u2019m a guy that makes things happen, so I started getting involved in the (Hawai\u2018i) Parkinson Association,\u201d elaborates Boster.<\/p>\n

\"\"

In his time as president of Hawai\u2018i Parkinson Association, Jerry Boster has increased membership and support for the organization, and more.
<\/p><\/div>\n

Initially, he formed a fundraising team for the association\u2019s annual walk (see story at right). When those efforts went well, he was asked to join the organization\u2019s board of directors in 2016. A year later, he was named its president and he\u2019s served in that role ever since.<\/p>\n

For Boster, addressing the needs of the whole person remains the association\u2019s focus, and exercise for those affected by the disease is \u201ca critical piece of their treatment.\u201d<\/p>\n

\u201cI have a triangle that I use,\u201d he explains. \u201cOne side of the triangle is medication, one side is exercise and the third side is wellness \u2014 which is diet and nutrition, mental stability, spirituality and all the other things that go into a person.\u201d<\/p>\n

As the leader of the nonprofit volunteer group, which comprises people living with the condition, caregivers, family members, health care professionals and business leaders, Boster is always looking for assistance in two primary ways \u2014 through volunteer work and donations. <\/p>\n

\u201cSupporting the patients and helping them live the best life they can is our No. 1 mission,\u201d says the man who spends much of his time advocating nationally on policy issues in coordination with the Michael J. Fox Foundation for Parkinson\u2019s research, as well as serving as an ambassador for the Parkinson\u2019s Foundation, Davis Phinney Foundation and more.<\/p>\n

Boster notes the local association conducts support groups, offers education and exercise sessions (which include boxing and cardio work), and pushes for ongoing research into a cure for Parkinson\u2019s.<\/p>\n

\u201cWe also started a couple more unusual things. We started up a choir. It\u2019s been very successful,\u201d he adds.<\/p>\n

\u201cBoxing for Parkinson\u2019s is different from a regular boxing class at a gym. Many times, it is one-on-one with just the instructor and the person with Parkinson\u2019s. The workout is all about building strength, dexterity and stamina, not actually boxing in the ring against somebody else,\u201d he notes.<\/p>\n

During his tenure as president, Boster has increased support, membership and more for the association. His efforts culminated with last year\u2019s establishment of the Hawai\u2018i Parkinson\u2019s Association Resource Center. Located at St. Francis Medical Center of Hawai‘i in Liliha, the center offers free information for new and existing patients.<\/p>\n

\u201cI\u2019ve been president for about four-and-a-half years, and the biggest thing we did in November of last year, was we opened up a brick-and-mortar resource center, a time right in the middle of COVID. It\u2019s a place where people \u2014 especially the newly diagnosed \u2014 can come and get information. When you\u2019re trying to accept a condition like Parkinson\u2019s, or any other major medical condition, you\u2019re struggling. And you don\u2019t want to have to deal with trying to do all this stuff on your own,\u201d Boster shares.<\/p>\n

He remembers how difficult it was for him personally that there was no such information center available at the time of his diagnosis in 2013.<\/p>\n

\u201cThe other thing we\u2019re trying to do is expand the number of support groups that we have \u2014 talk-story, caregiver and exercise groups \u2014 to reach out to as many Parkinson\u2019s patients as we can in Hawai\u2018i. There\u2019s about 7,000 diagnosed patients and we estimate about 3,000 undiagnosed patients,\u201d he explains.<\/p>\n

When he was diagnosed as a Parkinson\u2019s patient, he firmly decided to \u201cmake things happen\u201d and joined the effort to find a cure for the condition, including participating in a drug trial.<\/p>\n

Many drug treatment trials never get off the ground due to lack of volunteers, \u201cwhich is one of the things that motivates me to volunteer for the trials,\u201d Boster notes.<\/p>\n

He calculates that the estimated economic burden to the state is around $52,000 per Parkinson\u2019s patient, or $350 million total as of 2019.<\/p>\n

Military veterans suffering traumatic brain injuries from explosives, along with the extensive use of insecticides and pesticides, have been linked with Parkinson\u2019s symptoms, according to Boster.<\/p>\n

\u201cOne in 8 Parkinson\u2019s patients is a veteran like myself,\u201d he shares.<\/p>\n

Boster has worked at the U.S. Indo-Pacific Command as a federal civilian employee for the past seven years, and his current job is as an analyst there. October is National Disability Employment Awareness Month, and in 2018, Boster was selected for the Secretary of the Defense Award for Outstanding Civilians with Disabilities award. When giving presentations,<\/p>\n

Boster emphasizes the \u201cable\u201d in disable, and seeks to raise awareness about the condition.<\/p>\n

Originally from Southern California, Boster has called the \u2018\u0100huimanu neighborhood in Windward O\u2018ahu home for the past 13 years.<\/p>\n

Soon after moving to the islands, Boster joined a group of University of Hawai\u2018i football fans who made him and his wife feel like \u2018ohana.<\/p>\n

\u201cWe came here for the military, but we stayed because of the people and the \u2018\u0101ina,\u201d he notes. \u201cWe\u2019ve become part of our community, and part of that is giving back.\u201d<\/p>\n

Tim Bowden first came to know Boster and his wife over a decade ago at a football tailgate party for the UH Warriors.<\/p>\n

\u201cThe New Oxford American Dictionary<\/em> defines a hero as ‘a person who is admired or idealized for courage, outstanding achievements, or noble qualities,\u2019\u201d emphasizes Bowden.<\/p>\n

\u201cJerry Boster epitomizes that definition every day of his life.\u201d<\/p>\n

EXERCISING FOR PARKINSON\u2019S<\/h3>\n

Rather than hold a public walk at Magic Island in Honolulu like it\u2019s done in previous years, Hawai\u2018i Parkinson Association\u2019s annual Exercise Day will be held virtually in 2021 and comprise a series of short interactive exercise classes.<\/p>\n

The event is set for 9 a.m.-noon on Sunday, Nov. 14.<\/p>\n

\u201cThe classes will only be 5-7 minutes each,\u201d says Hawai\u2018i Parkinson Association president Jerry Boster. \u201cThe idea is to give people a feel for what that type of exercise is like but not tire them out since we are planning for 12 segments. We\u2019re planning segments across the exercise spectrum from the heavy cardio like boxing to the light, targeted exercises like singing and drumming.\u201d<\/p>\n

Each segment will have an instructor, including American Ninja Warrior<\/em> contestant Jimmy Choi, who also has Parkinson\u2019s.<\/p>\n

Boster is hoping to attract \u201cabout 200 people\u201d to this year\u2019s event.<\/p>\n

\u201cThis is also our big annual fundraiser,\u201d he says. \u201cOur goal is $50,000, the same as last year when we raised $54,000. We are off to a decent start and have raised about $25,000 so far.<\/p>\n

\u201cOne of the good things about donations is it all stays here in Hawai\u2018i,\u201d he adds. \u201cWe\u2019re an all-volunteer board. None of us gets paid.\u201d<\/p>\n

The public can register for the Nov. 14 event and donate by visiting go.rallyup.com\/hpawalk2021<\/a> and donations can also be made online at parkinsonshawaii.org<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"

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