{"id":2639,"date":"2025-11-12T00:00:49","date_gmt":"2025-11-12T10:00:49","guid":{"rendered":"https:\/\/hawaii.carpentermediagroup.com\/midweekhawaii\/?p=2639"},"modified":"2025-11-11T16:23:20","modified_gmt":"2025-11-12T02:23:20","slug":"living-in-the-moment","status":"publish","type":"post","link":"https:\/\/hawaii.carpentermediagroup.com\/midweekhawaii\/living-in-the-moment\/","title":{"rendered":"Living In The Moment"},"content":{"rendered":"
\"\"

Photo by Lawrence Tabudlo<\/p><\/div>\n

B<\/span>y all accounts, Peter Black has always possessed a keen mind and a sharp memory. When you work as an anthropology professor at a highly regarded university, mental acuity is naturally a requirement.<\/span><\/p>\n

But one day, his wife, Barbara, began to notice something out of the ordinary \u2014 the initial signs that his mind wasn\u2019t its usual self. While discussing plans for an upcoming party, Peter suggested they invite a particular person. An alarmed Barbara stopped and stared at him.<\/span><\/p>\n

\u201cShe just looked at me and said, \u2018Don\u2019t you know she\u2019s dead?\u2019 So, that was pretty impressive,\u201d Peter recounts.<\/span><\/p>\n

Soon, he began to experience additional \u201cerrors\u201d with his memory.<\/span><\/p>\n

\u201cOne that caught my attention was I was walking out of a store with a 20-pound standing rib roast. It cost me a lot of money and I don\u2019t have a lot of money,\u201d Peter recalls.<\/span><\/p>\n

Things got so bad that he began to feel that his teaching was threatening to become less than it needed to be as a professor at George Mason University in Virginia.<\/span><\/p>\n

According to Barbara, \u201cHe retired early because he felt that he couldn\u2019t give his students his best anymore. Lecturing was becoming harder for him. He used to be able to stand up without notes \u2026 so, I kept telling Peter, \u2018If you\u2019re concerned, you should go and be evaluated,\u2019 and that was my mantra, basically, until he did.\u201d\u00a0<\/span><\/p>\n

Ultimately, Peter took his wife\u2019s advice and made an appointment with neurologist Dr. Huidy Shu of Pali Momi Medical Center. The couple had split their time between Virginia and Hawai\u2018i for years before finally settling permanently in the Aloha State after Peter had retired. Following several tests, he was diagnosed with mild cognitive impairment in 2015. That diagnosis was changed to Alzheimer\u2019s over time and confirmed by a positron emission tomography (PET) scan.<\/span><\/p>\n

\u201cThey were very simple tests, although I didn\u2019t do well on them and that was a shock to me, because it was something I was totally confident about. I ended up with a diagnosis,\u201d says Peter, 83.\u00a0<\/span><\/p>\n

\u201cI was expecting something bad to happen,\u201d adds Barbara. \u201cBut it still just really shocked me. I started reading more about all of these things and trying to educate myself about everything.\u201d<\/span><\/p>\n

T<\/span>hese days, the Blacks are on a mission to help others navigate early Alzheimer\u2019s diagnosis and determined care. In spreading the word about their own experience with the disease, the couple hopes to encourage others to recognize the signs of Alzheimer\u2019s and get a cognitive assessment from a health care professional.<\/span><\/p>\n

Since 1983, November has been observed as Alzheimer\u2019s Awareness Month. Dementia is an overall umbrella term that describes a group of symptoms, such as memory loss, difficulties with language, problem solving and other cognitive functions. Alzheimer\u2019s disease is the most common type of dementia. Last year, the Alzheimer\u2019s Association estimated that more than 31,000 Hawai\u2018i residents are living with this disease.<\/span><\/p>\n

Peter credits his early and accurate diagnosis with giving him access to a disease-modifying therapy, which has been shown to slow his symptoms and allow him to retain more of his memory and cognitive function than would otherwise be possible. <\/span><\/p>\n

\u201cSo, you get more time as yourself,\u201d Peter explains. \u201cIt\u2019s not better, but it could be a lot worse.\u201d <\/span><\/p>\n

As part of his treatment, Peter takes several medications, including Leqembi, memantine and donepezil. The Leqembi is administered as an intravenous (IV) infusion every two weeks at Pali Momi. <\/span><\/p>\n

Peter and Barbara, 80, who is also managing her own long-term physical illnesses, live in the town of N\u012bnole on the Big Island. Despite their challenges, they travel to O\u2018ahu every two weeks so Peter can receive his treatment from one of the few memory care specialists in the state.<\/span><\/p>\n

The couple is grateful for friends who pick them up at the airport so Peter can attend his treatments. However, they pay for their own plane tickets, which becomes very expensive over time. <\/span><\/p>\n

\u201cThat\u2019s kind of an issue, because we\u2019re not rich. So, it shapes our lives,\u201d Peter says. <\/span><\/p>\n

\u201cOur lives sort of revolve around every other week coming over here (to O\u2018ahu) so that\u2019s difficult,\u201d adds Barbara. \u201cBut it\u2019s absolutely worth it.\u201d <\/span><\/p>\n

They say that although the burden of travel is significant, the time gained through treatment is invaluable. <\/span><\/p>\n

Their story underscores the importance of early detection and access to specialized care. It also highlights the urgent need to expand memory care services across Hawai\u2018i\u2019s neighbor islands and rural areas, so that more families can benefit from timely intervention without facing geographic and logistical barriers.<\/span><\/p>\n

\u201cNot everybody has the resources to be able to make that flight or to be able to get free, or have someone to help them over, or all of that. It\u2019s a matter of equity, if nothing else,\u201d Peter says. <\/span><\/p>\n

The couple is also appreciative for the assistance from their h\u0101nai daughter and her friend, who chose to live in a separate dwelling on their Big Island property.<\/span><\/p>\n

\u201cThey are here to help us and they really do,\u201d Peter says. <\/span><\/p>\n

A<\/span>ccording to the Blacks, the earlier the diagnosis of Alzheimer\u2019s disease, the better. To slow the onset of the disease, actions can be taken to gain valuable time. People should talk to their doctor about doing a cognitive screening if they notice changes in behavior. The couple adds that people should use Medicare benefits like annual wellness visits for cognitive assessments. <\/span><\/p>\n

\u201cI would just advise people to get evaluated and assessed,\u201d says Barbara. \u201cYou should ask for it, and when you get the results, you have more of an idea of what you need to think about and how you can plan for the future.<\/span><\/p>\n

\u201cThe sooner you know you have this disease, especially now that there are such wonderful treatments available, the better,\u201d she adds. <\/span><\/p>\n

Peter isn\u2019t sure what the future holds for him but considers himself very fortunate. Peter is grateful for his wife Barbara, also known as \u201cBobby,\u201d who has been a great support to him on this journey.<\/span><\/p>\n

\u201cBobby is a caretaker. Bobby is on it. She\u2019s great, and whatever comes along, we\u2019ll be in it together,\u201d he says of his wife. \u201cI am extremely fortunate to be able to be cheerful, telling jokes all the time.\u201d<\/span><\/p>\n

According to Barbara, good communication is a key to dealing with an Alzheimer\u2019s diagnosis. <\/span><\/p>\n

\u201cI\u2019ve discovered through this process that many of the people, where there\u2019s a couple and one person has the disease, they don\u2019t talk to each other about it. They know about it, but they don\u2019t seem to communicate, mostly, and I think that\u2019s a big mistake,\u201d she says. <\/span><\/p>\n

Since the diagnosis, the Blacks have also become advocates of the Alzheimer\u2019s Association.<\/span><\/p>\n

\u201cThey (the association) are so great at providing training, and support groups and information is readily available,\u201d Barbara says. <\/span><\/p>\n

The association also sponsors the Walk to End Alzheimer\u2019s, an annual event held in communities nationwide to raise funds and awareness for the care, support and research efforts of the association. The couple created Team Honohina and participated in the event in Hilo this past September. <\/span><\/p>\n

\u201cWe live on the East side, N\u012bnole, and the land that we bought \u2026 in the old times was called Honohina, so that\u2019s what we named our Alzheimer\u2019s team,\u201d Peter says. <\/span><\/p>\n

\u201cThe Alzheimer\u2019s Association does good work and that\u2019s for the whole country, and for me personally,\u201d Peter says. \u201cThe Alzheimer\u2019s Association has been one of the things in my life that has been very positive since I got this diagnosis. And getting the diagnosis early, sometimes you\u2019ve got to get your courage up a little bit and say, well, yeah, why not get tested. And if you get the bad news, accept it, or get a second opinion, if you want to. But, if it holds up, then the smart thing to do is not to hide from it. Live your life, but live it in the light of reality.\u201d<\/span><\/p>\n

Barbara also emphasizes that it\u2019s important to find joy in the little moments of life. The couple relish their hobbies, including making pottery, gardening and doting on their grandchildren. <\/span><\/p>\n

\u201cLook at the flowers. The thing about living in Hawai\u2018i is everywhere you look, even if you\u2019re doing something you don’t want to do, like pump gas, just lift your eyes up, and there\u2019s beauty there,\u201d says Barbara. \u201cAnd, that makes such a difference to me.\u201d<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"

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