{"id":5309,"date":"2024-03-19T17:15:02","date_gmt":"2024-03-20T03:15:02","guid":{"rendered":"https:\/\/hawaii.carpentermediagroup.com\/tgiclassifieds\/state-legals-public-notices\/public-hearings-state-legals-public-notices-2\/0001448952-01\/"},"modified":"2024-03-19T17:15:02","modified_gmt":"2024-03-20T03:15:02","slug":"0001448952-01","status":"publish","type":"post","link":"https:\/\/hawaii.carpentermediagroup.com\/tgiclassifieds\/state-legals-public-notices\/public-hearings-state-legals-public-notices-2\/0001448952-01\/","title":{"rendered":"0001448952-01"},"content":{"rendered":"<p align=\"center\">\n<font face=\"FranklinGothic-MedCnd\" size=\"2\" color=\"#000000\">STATE OF HAWAII<br \/>\nDEPARTMENT OF HEALTH<br \/>\nFAMILY HEALTH SERVICES DIVISION<br \/>\n<b>NOTICE OF PUBLIC HEARING<\/p>\n<p><\/b><\/font><\/p>\n<p><font size=\"2\" color=\"#000000\"> Pursuant to sections 91-3 and 92-41, Hawaii Revised Statutes (HRS), the Hawaii State Department of Health (DOH), Family Health Services Division will receive written comments and hold a public hearing to receive testimony on the proposed amendments to Hawaii Administrative Rules (HAR), Chapter 11-143, <\/font><font size=\"2\" color=\"#000000\"><i>Testing of Newborn Infants for Metabolic and Other Diseases. <\/i><\/font><font size=\"2\" color=\"#000000\"> <br \/>\n<\/font><font size=\"2\" color=\"#000000\"> <br \/>\n<\/font><font size=\"2\" color=\"#000000\"> The subjects and purposes of the proposed amendments are&#058;<br \/>\n         Section 11-143-3.  Definitions&#058;  Mucopolysaccharidosis Type I (MPS I),  Pompe,<br \/>\n<\/font><font size=\"2\" color=\"#000000\"> Spinal muscular atrophy (SMA), and X-linked adrenoleukodystrophy (X-ALD)  are added to the Hawaii screening panel of diseases.<br \/>\n  Section 11-143-4.5.  Fees and special fund.  The cost of each kit will  be increased from $99.00 to $155.00.   <br \/>\n<\/font><font size=\"2\" color=\"#000000\"> <br \/>\n<\/font><font size=\"2\" color=\"#000000\">Public hearings on the proposed amendments of Chapter 11-143, HAR will be held at the following location on April 30, 2024, at 10&#058;00 a.m. as follows&#058;<\/p>\n<p> <\/font><font size=\"2\" color=\"#000000\"><b><u>In Person&#058;<\/b><\/u><\/font><font size=\"2\" color=\"#000000\">  Wilcox Building, 741 Sunset Avenue, Honolulu, HI 96816<br \/>\n<\/font><font size=\"2\" color=\"#000000\"> <br \/>\n <\/font><font size=\"2\" color=\"#000000\"><b><u>Virtually&#047;Zoom Meeting for All Islands<\/b><\/font><font size=\"2\" color=\"#000000\"><u> (All interested persons statewide)&#058;<\/u><\/font><font size=\"2\" color=\"#000000\"> <br \/>\n <\/font><font size=\"2\" color=\"#000000\">Topic&#058; Public Hearing&#058; Hawaii Newborn Metabolic Screening Program Updates<\/p>\n<p><\/font><font size=\"2\" color=\"#000000\"> <\/font><font size=\"2\" color=\"#000000\">Time&#058; Apr 30, 2024, 10&#058;00 AM Hawaii<\/p>\n<p> Join Zoom Meeting<\/p>\n<p> <\/font><font size=\"2\" color=\"#000000\"><u>https&#058;&#047;&#047;zoom.us&#047;j&#047;95710720854<\/p>\n<p><\/u><\/font><font size=\"2\" color=\"#000000\"> Meeting ID&#058; 957 1072 0854<\/p>\n<p> One tap mobile<\/p>\n<p> +12532050468,,95710720854&#035; US<\/p>\n<p> +12532158782,,95710720854&#035; US (Tacoma)<\/p>\n<p><\/font><font size=\"2\" color=\"#000000\"><b><u>Oral&#047;Written Testimony&#058;<\/b><\/u><\/font><font size=\"2\" color=\"#000000\">  All interested persons may submit testimony orally or in writing to the presiding hearings officer at the public hearing.  Written testimony will also be accepted until <\/font><font size=\"2\" color=\"#000000\"><u>4&#058;30 p.m. on April 29, 2024,<\/u><\/font><font size=\"2\" color=\"#000000\"> at&#058;  Children with Special Health Needs Branch (HAR 11-143) 741 Sunset Avenue, Honolulu, Hawaii, 96816.<\/p>\n<p><\/font><font size=\"2\" color=\"#000000\"> Copies of the proposed rules are available for review at the Children with Special Health Needs Branch at the address above during the hours of 8&#058;00 a.m. <\/font><font size=\"2\" color=\"#000000\">to 4&#058;00 p.m., Monday through Friday (not including State Holidays).  The proposed rules are also available at&#058;  <\/font><font size=\"2\" color=\"#000000\"><u>http&#058;&#047;&#047;health.hawaii.gov&#047;opppd&#047;administrative-rules&#047;<\/u><\/font><font size=\"2\" color=\"#000000\">.<br \/>\n<\/font><font size=\"2\" color=\"#000000\"> A copy of the proposed rules will be mailed or emailed to any interested person who requests a copy.  For a mailed copy, call (808) 733-9069 (Oahu) for information and send to the <\/font><font size=\"2\" color=\"#000000\"><u>Children with Special Health Needs Branch<\/u><\/font><font size=\"2\" color=\"#000000\"> at the address above a written request with the name&#047;address of the requestor. For emailed copies please send request to dana.mulcahy@doh.hawaii.gov.<br \/>\n<\/font><font size=\"2\" color=\"#000000\"> Persons requiring special assistance or services (e.g., sign language interpreter, large print, etc.) should call the Newborn Metabolic Screening Program at (808) 733-9069 (Oahu) by April 16, 2024, to secure and assure accommodation, although all reasonable attempts will be made to support access to the hearing. <br \/>\n DOH will make the final decision on the proposed amendments after considering all presented testimonies from the hearing and will send notice of the final decision taken with respect to the proposed HAR.<\/p>\n<p><\/font><font size=\"2\" color=\"#000000\">(SA&#047;HTH&#047;WHT&#047;TGI1448952     3&#047;20&#047;24)<\/font><\/p>\n","protected":false},"excerpt":{"rendered":"<p>STATE OF HAWAII DEPARTMENT OF HEALTH FAMILY HEALTH SERVICES DIVISION NOTICE OF PUBLIC HEARING Pursuant to sections 91-3 and 92-41, Hawaii Revised Statutes (HRS), the Hawaii State Department of Health (DOH), Family Health Services Division will receive written comments and hold a public hearing to receive testimony on the proposed amendments to Hawaii Administrative Rules [&hellip;]<\/p>\n","protected":false},"author":0,"featured_media":0,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[326],"tags":[],"class_list":["post-5309","post","type-post","status-publish","format-standard","hentry","category-public-hearings-state-legals-public-notices-2"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - 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